Collaborating on Research
SARRC's research brings together many methods and scientists in an effort to gain greater understanding of possible causes of autism, identify better treatments, and learn, as well as educate others, about how to improve the quality of life for those affected by ASD and their families. We believe that collaborating with other researchers helps us better answer some of the essential questions facing individuals, families, and the greater community.
You can learn more about participating in research at SARRC by reading "Understanding Pharmaceutical Trials," a brief article written by Dr. Christopher J. Smith, SARRC's Vice President and Research Director, in our Outreach magazine, October 2012.
Common questions about participating in SARRC research studies
What does my particiation involve?
This varies depending upon each individual research project. Clinical trials usually require a weekly or bi-weekly visit to SARRC. Genetic studies may require families to complete a series of assessments, including diagnostic assessments, medical evaluations, and a family blood draw. Diagnostic evaluations will be performed with one parent and each affected child over the course of two clinic visits.
A pediatric geneticist and developmental pediatrician will perform medical examinations of the affected children before blood is drawn on all family members on a third clinic visit. Additional assessments may be completed over the telephone. The duration of each visit will vary from family to family.
Will our child's or family's information be kept confidential?
Yes. All data and blood collected by SARRC are kept strictly confidential and coded with a confidential ID number to protect your family's identity. No family contact information will be shared with anyone outside of SARRC without your permission.
Who is paying for this research?
SARRC receives funding from research study sponsors, collaborating research institutions, grants, and private donors. There is no cost to your family to participate.
To learn more or participate in current autism research at SARRC, contact Sharman Ober-Reynolds, MSN, RN, C-FNP, SARRC Research Coordinator, (602) 218-8225 or email@example.com.